for patients or parents of minor patients

Are you affected by a lymphatic malformation?

Willkommen auf der Website der Lymphangioma Association

Our Association has been active since 2014 in representing adult and child patients suffering from lymphatic malformations.
Our association’s purpose is to :

  • Unite patients
  • Communicate reliable information about these rare conditions
  • Direct patients towards specialised multidisciplinary medical care
  • Obtain recognition for the role of complementary therapies
  • Share and communicate patients’ varied medico-social experiences
  • Gather statistics for the upkeep of a data-base
  • Inform patients of their rights and help to enforce these
  • Boost fundamental medical research into lymphatic function and the causes of these malformations

The association is in contact with French and other European organisations and patients’ support groups such as CLOVES - AVML VASCAPA EURORDIS, also rare diseases groups (Fava-Multi-Fimarad-Tetecou…) VASCern, the European network for rare vascular multi-systemic illnesses and ISSVA, the internationale society for the study of Vascular Anomalies.

Take part in our Survey !

If you are directly concerned by a lymphatic malformation, whether patient of a minor patient, please fill in our questionnaire and help us direct others towards good, efficient medical care.


To register on the map, the patient or parents can fill in the application form without any previous obligation concerning membership of the association.

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The medical information on this site does not replace in any case the medical consultation which alone makes it possible to establish a diagnosis
and to put in place a protocol of care adapted to each individual case.
©2024 Lymphangioma Association

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