for patients or parents of minor patients

Are you affected by a lymphatic malformation?

Welcome to the Lymphangioma Association Website

Our Association has been active since 2014 in representing adult and child patients suffering from lymphatic malformations.
Our association’s purpose is to :

  • Unite patients
  • Communicate reliable information about these rare conditions
  • Direct patients towards specialised multidisciplinary medical care
  • Obtain recognition for the role of complementary therapies
  • Share and communicate patients’ varied medico-social experiences
  • Gather statistics for the upkeep of a data-base
  • Inform patients of their rights and help to enforce these
  • Boost fundamental medical research into lymphatic function and the causes of these malformations

The association is in contact with French and other European organisations and patients’ support groups such as CLOVES - AVML VASCAPA EURORDIS, also rare diseases groups (Fava-Multi-Fimarad-Tetecou…) VASCern, the European network for rare vascular multi-systemic illnesses and ISSVA, the internationale society for the study of Vascular Anomalies.

Our events and actions

Theatre "Les femmes à l'Ouvrage"

01 December 2016

En Région Pays-de-la-Loire, les bénévoles organisent tous les ans une soirée théâtre. La Compagnie "Les voisines" ont donné une représentation s'intitulant "Les femmes à l'ouvrage" à la salle culturelle de...

Take part in our Survey !

If you are directly concerned by a lymphatic malformation, whether patient of a minor patient, please fill in our questionnaire and help us direct others towards good, efficient medical care.


Localising patients


To register on the map, the patient or parents can fill in the application form without any previous obligation concerning membership of the association.

Our partners

About the association

The Lymphangioma Association is the first association in Europe bringing together patients affected by Lymphatic Malformation. Founded in February 2014 and declared to the Seine and Marne prefecture in the Île de France region.

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Agir Malformation Lymphatique Aliiance
12 rue Abel Leblanc

The medical information on this site does not replace in any case the medical consultation which alone makes it possible to establish a diagnosis
and to put in place a protocol of care adapted to each individual case.
©2024 Lymphangioma Association